Grateful to be home

Payton has had one of his worst days post surgery. He has been in a lot of pain today and spent most of his day in bed. It breaks my heart when he cries because his tummy hurts. He feels best when he lies flat with no pillows. Payton cannot sit up or walk on his own. It makes him frustrated. Payton was sad to say goodbye to his Grandma today and has asked all day where she went. Payton ate a little better today. Payton is looking really skinny and frail. We are taking baby steps to recovery but hoping to get there soon. It was nice to be able to sleep in our own bed last night and we are so glad to be at home away from the hospital. We are grateful for every day that we have.