Since we got Payton home from his 5 days of chemo in the hospital, he has been pretty cross, which is to be expected for all that he has been through. Payton has wanted to be held a lot and doesn’t have much energy. We took him in on Thursday to check his blood counts and he ended up needing another platelet transfusion. I guess that explains why he hasn’t had much energy. Payton’s blood counts drop to the lowest point 7 to 10 days after his first dose of chemo, which is right where we are at. Payton is most susceptible to anything right now and has to be watched close.
While we were at the hospital getting blood work done today, we were able to talk with one of the oncologist. We were talking with the oncologist about The National Protocol and how they had added a fifth chemo drug carboplatin, which has been used as a relapse drug for Wilm’s tumors, brain tumors and other types of cancers. Through this National Protocol study we are hoping that by adding this drug and using it upfront that it will increase our odds of no relapse even more. We just hope that this never comes back since that would mean that these cancer cells would be resistant to carboplatin. Payton is going through a pretty heavy dosage of chemo in hopes that we will get rid of any existing cancer cells the first time around. I think they are hitting him like they would have hit a relapse patient years ago. Our oncologist said that we have every reason to be optimistic. We are doing everything that we can and leaving the rest in the Lord’s hands. This is going to be a really bumpy remaining 25 weeks. The doctors are watching Payton really close and hope that he will be well enough to stay on the protocol and finish his full chemo. We are so proud of Payton. He is going to be the toughest little boy if he can make it through all of this. We love him so much and are so grateful that we have two wonderful kids.
While we were at the hospital getting blood work done today, we were able to talk with one of the oncologist. We were talking with the oncologist about The National Protocol and how they had added a fifth chemo drug carboplatin, which has been used as a relapse drug for Wilm’s tumors, brain tumors and other types of cancers. Through this National Protocol study we are hoping that by adding this drug and using it upfront that it will increase our odds of no relapse even more. We just hope that this never comes back since that would mean that these cancer cells would be resistant to carboplatin. Payton is going through a pretty heavy dosage of chemo in hopes that we will get rid of any existing cancer cells the first time around. I think they are hitting him like they would have hit a relapse patient years ago. Our oncologist said that we have every reason to be optimistic. We are doing everything that we can and leaving the rest in the Lord’s hands. This is going to be a really bumpy remaining 25 weeks. The doctors are watching Payton really close and hope that he will be well enough to stay on the protocol and finish his full chemo. We are so proud of Payton. He is going to be the toughest little boy if he can make it through all of this. We love him so much and are so grateful that we have two wonderful kids.
P.S. Payton saw a picture of his tumor today and pointed to it and said "pizza."
1 comment:
Cute pictures of Payton- We are praying so much for him and all of you that you can remain optimistic and full of strength! We are so proud of you and how you are handling this- we love you!
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